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TURNER SYNDROME

I am writing to you today to increase your awareness of a common yet uncommonly known condition that affects 1 in 2000 females. This condition is known as Turner Syndrome. The condition results from the complete or partial absence of the second sex chromosome. The Turner Syndrome Foundation was established in 2009 to advocate for girls and women with Turner Syndrome and to increase awareness of the condition among medical professionals so that the condition can be diagnosed at an early age. Currently the condition is diagnosed at an age where it is too late to receive the necessary treatments so that these girls can live normal lives.

As a school nurse, knowing the signs of Turner Syndrome in a girl is crucial as you may be the first one to realize that this girl has characteristics that differ from those of her classmates. You could then alert her parent or guardian that she may have a condition that would require treatment with a specialist. Awareness of the condition is the first step to understanding and acceptance of the condition. Many girls and women feel alone in having this condition so your knowledge of the condition could provide them with someone who they could turn to for guidance and support in dealing with any issues that arise. Our website, www.tsfusa.org, provides a wealth of resources about Turner Syndrome and I would greatly appreciate your sharing this link with other members of your association so that they also can learn about Turner Syndrome. 

Thank you,
Caitlin Gong

Program Assistant

TurnerSyndromeFoundation.org
1-800-594-4585: Office
1-800-594-3862: Fax
cgong@tsfusa.org: Email
Mailing address:
Turner Syndrome Foundation

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You're Invited to Give Input on the Office of the Surgeon General's Future Call to Action on Walking Comment now at everybodywalk.org/takeaction   Walking is the key to a stronger, healthier America. For families, walking to and from school and in daily life is a great way to spend time together and create healthy, active lifestyles for our kids. As the walking movement continues to gain momentum in 2013, you have the chance to help guide the national agenda around getting more people walking and building walkable communities. Until April 30, the US Surgeon General is looking for feedback from the public on what should be included in a future call to action around walking. Please join the Safe Routes to School National Partnership in responding! What You Can Do  We are calling on organizations and individuals to submit public comment to the Federal Register. You can submit any promising ideas or effective practices that you think would be work to advance walking or walkability at the national or local levels. Go to everybodywalk.org/takeaction Watch inspiring videos Link to the Federal Register to submit your comments Endorse a sign-on letter outlining key principles Go for a walk! Encourage your stakeholders to give input. Forward this email and post this link on Facebook! Just like recent calls to action and reports by the Surgeon General (breastfeeding, healthy homes and smoking), your feedback will be consolidated and combined into the proposed call to action on walking. More Details on the Public Comment Period During the window of April 1-30, 2013, you have a unique opportunity to provide comment to the Federal Register on the proposed call to action on walking. Go toeverybodywalk.org/takeaction, where you will able to easily access the Federal Register Notice, and submit detailed comments on the proposed call to action on walking. All input will be considered by the Office of the Surgeon General. Don't miss the chance to make your voice heard. The Safe Routes to School National Partnership is proud to be a partner in the Every Body Walk Collaborative. For more information about the Collaborative or the Call to Action, contact info@everybodywalk.org. Please take action today, to help tomorrow's children have safer routes, lanes and paths. Sincerely, Deb Hubsmith Director Safe Routes to School National Partnership